painting pictures with words

A woman facing away from the camera walks from a director's chair and toward an AI-generated cloud backdrop on a film set. A woman facing away from the camera walks from a director's chair and toward an AI-generated cloud backdrop on a film set.

painting pictures with words

Generative AI can create entire worlds from simple prompts or complex feelings. Taking direction from conversations with people living with an MPN, AI turned their words into imagery inspired by symptoms in real time, depicting their hidden, nuanced journeys.

See Experiences
An AI visualization of polycythemia vera symptoms, showing a cloud of dust over a pool table An AI visualization of polycythemia vera symptoms, showing a cloud of dust over a pool table

We’re playing 8-ball, I get up to shoot…and I can’t remember if I have solids or stripes. I can’t figure it out.”
Dave S. on brain fog

explore the unseen worlds of mpns

Immerse yourself in the unique symptom stories 
and experiences of people living with MPNs.

explore the unseen worlds of mpns

Immerse yourself in the unique symptom stories
and experiences of people living with MPNs.

explore the unseen worlds of mpns

Immerse yourself in the unique symptom stories 
and experiences of people living with MPNs.

Ben, a middle-aged man with myelofibrosis, poses in front of an AI-generated image of a picnic at the lake. Ben, a middle-aged man with myelofibrosis, poses in front of an AI-generated image of a picnic at the lake.
BEN H.

Learn how Ben’s symptoms kept him
from enjoying quality family time.

Ben, a middle-aged man with myelofibrosis, poses in front of an AI-generated image of a picnic at the lake.

BEN H.

Ben dealt with tough MPN symptoms like brain fog and night sweats for years. When he realized they were preventing him from experiencing life’s precious moments, he knew he had to do something different. Learn how Ben has been empowered to live life to the fullest despite his MPN.

Read Ben’s Story
Ben, a middle-aged man with myelofibrosis, poses in front of an AI-generated image of a picnic at the lake.
Marilyn, a woman with myelofibrosis, poses in front of an AI-generated image of a beach at sunset. Marilyn, a woman with myelofibrosis, poses in front of an AI-generated image of a beach at sunset.
MARILYN E.

See how Marilyn’s fever and itching dampened her adventurous spirit.

Marilyn, a woman with myelofibrosis, poses in front of an AI-generated image of a beach at sunset.

MARILYN E.

When Marilyn started experiencing MPN symptoms, she initially thought it was old age. But as they worsened, she knew something more serious was going on. Discover how Marilyn navigates the challenges of living with an MPN with the support of her loved ones.

Read Marilyn’s Story
Marilyn, a woman with myelofibrosis, poses in front of an AI-generated image of a beach at sunset.
Mickey, an older man with polycythemia vera, stands superimposed in front of an AI-generated image of a football field. Mickey, an older man with polycythemia vera, stands superimposed in front of an AI-generated image of a football field.
MICKEY T.

Inside Mickey’s battle with
fatigue and night sweats.

An AI visualization of polycythemia vera symptoms, showing a football field in the sunset against the background of a mountain range

MICKEY T.

Though he looked healthy on the outside, Mickey had a battle going on inside him. His two main MPN symptoms — fatigue and night sweats — changed the way he experienced life. Watch as Mickey describes his journey and then see his symptoms take shape.

Read Mickey’s Story
An AI visualization of polycythemia vera symptoms, showing a football field in the sunset against the background of a mountain range
Chelsea, a young blonde woman with polycythemia vera, poses in front of an AI-generated image of a guitar in a field. Chelsea, a young blonde woman with polycythemia vera, poses in front of an AI-generated image of a guitar in a field.
CHELSEA P.

How Chelsea’s bone pain, headaches
and brain fog clouded her world.

Chelsea, a young woman with polycythemia vera, stands in front of an AI-generated background of pink clouds and looks upwards.

CHELSEA P.

Chelsea’s MPN symptoms deeply affected the most important things in her life — being a mother and her budding country music career. Hear from Chelsea about what it’s like to live with her symptoms and then have them come to life before her eyes.

Read Chelsea’s Story
Chelsea, a young woman with polycythemia vera, stands in front of an AI-generated background of pink clouds and looks upwards.
Dave, an older man with polycythemia vera, stands superimposed in front of an AI-generated image of a pier leading out to water. Dave, an older man with polycythemia vera, stands superimposed in front of an AI-generated image of a pier leading out to water.
DAVE S.

Learn how Dave’s symptoms
impacted his lifelong love of fitness.

An AI visualization of polycythemia vera symptoms, showing a pier leading out to a body of water

DAVE S.

Being active and spending time with his family were two of Dave’s biggest joys in life. But when he started experiencing his MPN symptoms, he was forced to make difficult changes. AI-generated images helped bring Dave’s MPN story to life and gave him a new way to share what he was experiencing with his loved ones.

Read Dave’s Story
An AI visualization of polycythemia vera symptoms, showing a pier leading out to a body of water
Ashlee, a young woman with polycythemia vera, poses in front of an AI-generated image of a table set for tea on a patio at sunset. Ashlee, a young woman with polycythemia vera, poses in front of an AI-generated image of a table set for tea on a patio at sunset.
ASHLEE J.

See how severe headaches and brain
fog disrupted Ashlee’s creative process.

Ashlee, a young woman with polycythemia vera, poses in front of an AI-generated image of a table set for tea on a patio at sunset.

ASHLEE J.

As a photographer and entrepreneur, Ashlee uses her creativity to deliver captivating visuals that tell a story. Discover how Ashlee’s MPN symptoms drove her to change the way she works, and how images created about her MPN symptoms helped her view her own journey in a new way.

Read Ashlee’s Story
Ashlee, a young woman with polycythemia vera, poses in front of an AI-generated image of a table set for tea on a patio at sunset.

explore the unseen worlds of mpns

Immerse yourself in the unique symptom stories 
and experiences of people living with MPNs.

Ben, a middle-aged man with myelofibrosis, poses in front of an AI-generated image of a picnic at the lake.
BEN H.

Learn how Ben’s symptoms kept him
from enjoying quality family time.

Ben, a middle-aged man with myelofibrosis, poses in front of an AI-generated image of a picnic at the lake.

BEN H.

Ben dealt with tough MPN symptoms like brain fog and night sweats for years. When he realized they were preventing him from experiencing life’s precious moments, he knew he had to do something different. Learn how Ben has been empowered to live life to the fullest despite his MPN.

Read Ben’s Story
Marilyn, a woman with myelofibrosis, poses in front of an AI-generated image of a beach at sunset.
MARILYN E.

See how Marilyn’s fever and itching dampened her adventurous spirit.

Marilyn, a woman with myelofibrosis, poses in front of an AI-generated image of a beach at sunset.

MARILYN E.

When Marilyn started experiencing MPN symptoms, she initially thought it was old age. But as they worsened, she knew something more serious was going on. Discover how Marilyn navigates the challenges of living with an MPN with the support of her loved ones.

Read Marilyn’s Story
Mickey, an older man with polycythemia vera, stands superimposed in front of an AI-generated image of a football field.
MICKEY T.

Inside Mickey’s battle with
fatigue and night sweats.

An AI visualization of polycythemia vera symptoms, showing a football field in the sunset against the background of a mountain range

MICKEY T.

Though he looked healthy on the outside, Mickey had a battle going on inside him. His two main MPN symptoms — fatigue and night sweats — changed the way he experienced life. Watch as Mickey describes his journey and then see his symptoms take shape.

Read Mickey’s Story
Chelsea, a young blonde woman with polycythemia vera, poses in front of an AI-generated image of a guitar in a field.
CHELSEA P.

How Chelsea’s bone pain, headaches
and brain fog clouded her world.

Chelsea, a young woman with polycythemia vera, stands in front of an AI-generated background of pink clouds and looks upwards.

CHELSEA P.

Chelsea’s MPN symptoms deeply affected the most important things in her life — being a mother and her budding country music career. Hear from Chelsea about what it’s like to live with her symptoms and then have them come to life before her eyes.

Read Chelsea’s Story
Dave, an older man with polycythemia vera, stands superimposed in front of an AI-generated image of a pier leading out to water.
DAVE S.

Learn how Dave’s symptoms
impacted his lifelong love of fitness.

An AI visualization of polycythemia vera symptoms, showing a pier leading out to a body of water

DAVE S.

Being active and spending time with his family were two of Dave’s biggest joys in life. But when he started experiencing his MPN symptoms, he was forced to make difficult changes. AI-generated images helped bring Dave’s MPN story to life and gave him a new way to share what he was experiencing with his loved ones.

Read Dave’s Story
Ashlee, a young woman with polycythemia vera, poses in front of an AI-generated image of a table set for tea on a patio at sunset.
ASHLEE J.

See how severe headaches and brain
fog disrupted Ashlee’s creative process.

Ashlee, a young woman with polycythemia vera, poses in front of an AI-generated image of a table set for tea on a patio at sunset.

ASHLEE J.

As a photographer and entrepreneur, Ashlee uses her creativity to deliver captivating visuals that tell a story. Discover how Ashlee’s MPN symptoms drove her to change the way she works, and how images created about her MPN symptoms helped her view her own journey in a new way.

Read Ashlee’s Story

seeing the bigger picture

Discover some of the ways people living with an MPN view their symptoms below, and see if anything feels familiar. Please note, this isn’t a comprehensive list. It’s important to observe and track your own symptoms, and talk to your care team if you notice any changes in your symptoms.

Brain Fog
An AI visualization of polycythemia vera symptoms, expressing brain fog with the image of fog surrounding a gray couch An AI visualization of polycythemia vera symptoms, expressing brain fog with the image of fog surrounding a gray couch
Abdominal Discomfort
An AI visualization of myelofibrosis symptoms, expressing fever with pink gelatin in front of snowy mountains. An AI visualization of myelofibrosis symptoms, expressing fever with pink gelatin in front of snowy mountains.
Fatigue
An AI visualization of polycythemia vera symptoms, expressing fatigue with a hotel bar that is flooding with water. An AI visualization of polycythemia vera symptoms, expressing fatigue with a hotel bar that is flooding with water.
Fever
An AI visualization of myelofibrosis symptoms, expressing fever with pink gelatin in front of snowy mountains. An AI visualization of myelofibrosis symptoms, expressing fever with pink gelatin in front of snowy mountains.
Night Sweats
An AI visualization of polycythemia vera symptoms, expressing night sweats with an image of a bed floating in water An AI visualization of polycythemia vera symptoms, expressing night sweats with an image of a bed floating in water
Itching
An AI visualization of polycythemia vera symptoms, expressing itching with an image of a bathtub surrounded by barbs An AI visualization of polycythemia vera symptoms, expressing itching with an image of a bathtub surrounded by barbs

seeing the bigger picture

Discover some of the ways people living with an MPN view their symptoms below, and see if anything feels familiar. Please note, this isn’t a comprehensive list. It’s important to observe and track your own symptoms, and talk to your care team if you notice any changes in your symptoms.

  • Brain Fog
  • Abdominal Discomfort
  • Fatigue
  • Weight Loss
  • Fever
  • Night Sweats
  • Itching
  • INACTIVITY
  • Bruising
  • Abdominal Pain/Discomfort
  • Bone Pain
  • Shortness of Breath
  • Difficulty Sleeping
  • PROBLEMS WITH CONCENTRATION

Recognizing your symptoms starts with you

A person holds a smartphone displaying the MPN symptom tracker app

You are the key to noticing your symptoms so that they can be managed. So be honest with yourself. That means talking about all of your symptoms because any one of them can affect your quality of life. If you have any symptoms, it is important to tell your healthcare provider, as this could mean that your disease is progressing. So don’t wait and start tracking your symptoms.

Track Your Symptoms
A person holds a smartphone displaying the MPN symptom tracker app